YEA in North Macedonia organize an event to mark “Rare Disease month”
YEA in North Macedonia organize an event to mark “Rare Disease month”
February is Rare Disease Month, and 28 February is international Rare Disease Day. On the initiative of Irena Shumenkovska, a Young European Ambassador (YEA) from North Macedonia, a discussion was organized on 28 February on the occasion of the International Day of Rare Diseases.
Speakers at this event were His Excellency the EU Ambassador to North Macedonia David Geer, the first lady Professor Dr. Elizabeta Gjorgievska, doctors, professors, representatives from associations for rare diseases and students, who made an active contribution to the debate. The debate was moderated by the Young European Ambassador Irena Shumenkovska. The discussion aimed at contributing to improving the status of people with rare diseases, finding a suitable drug and equal access to the drug because life has no price. Health, good quality of life, treatment and care are fundamental human rights of every individual.
The event was organized in cooperation with the Delegation of the European Union in North Macedonia, Europe House Skopje and We Balkans.